or Connect
New Posts  All Forums:Forum Nav:

Backsliding in recovery - Page 16

post #451 of 1017
Thread Starter 
That has GOT to be photoshopped! How would you wipe your own ass with those arms? Grotesque.

These are low dose steroids that only work in the intestine with no more than 10% of the medication released to the bloodstream. I'm not worried. Some people with MS get IV drips of steroids just so they can function. I've had a few, and trust me.......it's not going to do THAT....EVER! I might grow some extra parts, though.
post #452 of 1017
Thread Starter 
I'm about fed up with the Boston area doctors.

I called last week and made an appointment for APRIL 23 with the gastro doc, the day I see the neurologist (who never returns phone calls and I've called twice since Friday). The secretary and I bantered several times around for a while trying to fit me in so I wouldn't have to make a separate trip to Boston. After the Singulair nasal spray vs. tablet debacle, I was in no mood to go weeks without making some progress. The Singulair doesn't seem to do anything.

Since I was going to be in Boston April 16 and 23 for appointments, I wanted to get in either of those days. The only time slot she had available was 9:30, which I wasn't wild about since I'd have to get up at 4:30 am in order to get there in time. I took it anyway.

I got a letter today with my appointment scheduled for MAY 23. WTF?

I call, get a different secretary (the one I talked to last week is now on maternity leave), and she says 'You can't have an appointment April 23. The doctor is not here on Wednesdays." I tell her I certainly can't wait until the end of May to see him, and she says, "You've ALREADY seen him once.":::

Is that all you're ALLOWED?? GRRRR.

I tell her that his 'remedy' is not working and I have the pain back, and I don't want to sit around for 6 weeks waiting to talk to him. She starts getting this attitude that I just hate (the attitude that I work for HER and I'm inconveniencing her). She tells me she can ask the doctor if he'll come in JUST FOR ME on that day, and how it will take a while to get back to me....

and I decide while she's talking that this is not going to work for me any more than the neurologist who never calls me back and sets follow up appointments for 3 months down the road with no communication between us unless I throw a HISSY FIT, which I don't like to do unless necessary.

So I throw a Hissy Fit.

I say, "Listen. Here's what I'm going to do. I'm going to come in on April 23 and get all of my records. I have a flash drive there and I want a copy of Dr. Y's report of my first and only visit. I'll go see someone else."

She is still arguing saying that she can call me back in an hour......you're not willing to wait for an hour?.....and her tone is so nasty I have to tell her not to get nasty with me, and she says "I'm not getting nasty with you" and you can hear the ice cracking on the phone.:

The attitude in Boston seems to be once they know you're not dying, they could really give a ****. There's a shortage of doctors in this state, according to a report in the newspaper, and that translates into poor quality of care.

I can't leave this state fast enough.
post #453 of 1017
Quote:
Originally Posted by Bonni View Post
I'm about fed up with the Boston area doctors.

snip

I can't leave this state fast enough.
Bonni:

Sorry to read about everything that has gone wrong. Does that mean you'll soon be moving here?

I never hear of folks 'round here having so much trouble getting Dr. appointments!
post #454 of 1017
Bonni, I know it means flying somewhere, but my boss just visited the Mayo Clinic down in Arizona. All the relevant docs were lined up to evaluate him, he was poked and prodded and everything for three days, but he felt that FINALLY someone knew what they were doing.

There are three: Arizona, Minnesota, and Florida.

"Many viewpoints
Mayo's system is built on working together: encouraging doctors to freely consult with each other about patients (which is why Mayo doctors are called "consultants"). Patients do not get just one opinion at Mayo; they get multiple opinions. The principle at Mayo is two heads are better than one and five are even better.
One-stop care
Virtually all medical services a patient might need -- doctor visits, testing, surgery, hospital care -- are available "under one roof" at Mayo Clinic. The scheduling of these services is done in a coordinated and efficient way, so that what might take months to accomplish in a community setting can be done in a matter of days at Mayo."
post #455 of 1017
Thread Starter 
That is what I was hoping for at Mass General. No such thing exists, and the nurse case manager told me that 'only happens on tv.'

I can't go to any of those places unless I pay for it myself. UNLESS, I just happen to be 'visiting' and have issues....
post #456 of 1017
Try a hospital associated with a med school "training hospital".
post #457 of 1017
Quote:
Originally Posted by Bonni View Post
That is what I was hoping for at Mass General. No such thing exists, and the nurse case manager told me that 'only happens on tv.'

I can't go to any of those places unless I pay for it myself. UNLESS, I just happen to be 'visiting' and have issues....
I assume this has something to do with insurance. Can't you get an "in network" doctor to refer you to Mayo for some reason?
post #458 of 1017
Quote:
Originally Posted by sibhusky View Post
I assume this has something to do with insurance. Can't you get an "in network" doctor to refer you to Mayo for some reason?
Yeah, Bonni, how about that guy who just had to have you undergo a test he didn't trust from wherever else it was you had the test and then couldn't find anything different in his test? Maybe since he was at a loss, he'd refer you to Mayo.
post #459 of 1017
Thread Starter 
Quote:
Originally Posted by skidbump View Post
Try a hospital associated with a med school "training hospital".
Mass General is a teaching hospital.

I'll find out if I can be referred to someplace like Mayo and have insurance cover it. Seems like a good thing to check out.
post #460 of 1017
Thread Starter 
Quote:
Originally Posted by SkiMerlin View Post
Bonni:

Sorry to read about everything that has gone wrong. Does that mean you'll soon be moving here?

I never hear of folks 'round here having so much trouble getting Dr. appointments!
We'll be in Spokane in June to do some camping with GarryZ and some members of my family. Maybe we can meet and say hullo. :
post #461 of 1017
Thread Starter 
Neurologist finally called me back last night at 5:30. I told him about sleeping too much and the vision problems (still can't read). He said to taper back to 50mg, take it at 6 pm, and see how that works. He said I probably went up in dosage too fast. I was just following his orders.

We'll discuss this when I see him in 2 weeks with fresh MRI's in hand. At least he called back.
post #462 of 1017
Hey Bonni maybe you should get in touch with that TV show Mystery Diagnosis...http://health.discovery.com/fansites...diagnosis.html
post #463 of 1017
Thread Starter 
HA! I am too uninteresting for tv.

Oh, headaches? Phhht.
Recurring diarrhea, alternating with constipation, stomach pain, back pain, bleeding fissures? Phht.

Hell, Girl, you're just getting OLD! Stop whining and get outta here.
post #464 of 1017
Quote:
Originally Posted by Bonni View Post
That is what I was hoping for at Mass General. No such thing exists, and the nurse case manager told me that 'only happens on tv.'
She lied.

The Insurance Company is the only entity (other than you) who cares about closing your case. The docs have perpetual income streams from patients just like you.

Cal the INSCO, ask for your Adjuster / Claims Manager. Tell THEM you want a "Staffing" ASAP. (If they tell you only the Nurse Case Manager can do that, tell them you want a different NCM because the one who is supposed to be helping you isn't.)

Ask the Claims Manager "How many days will this take for you to arrange?" (Expect 2-4.) "Great! I'll call you back in 4 days ... and if the doctors are not cooperating with you, I'll contact the local papers and TV stations and we'll put the pressure of Bad Publicity on these foot-dragging doctors."

(The Claims Manager needs to think you are helping him/her move your file into the CLOSED stack ... not that you are badgering him/her to do their job.)

- KK
post #465 of 1017
Thread Starter 
I will do that tomorrow, KK. I don't expect to actually get a person on the phone, though. ARGH.
post #466 of 1017
Thread Starter 
Left a message. I suppose they don't work on Fridays.:

I made a windchime outta that rod. It was so heavy it had to go in the middle! The tubes on the outside will have to move to make noise.

If the rod is swingin........Head for the Basement!:

post #467 of 1017
Thread Starter 
The windchime only tolls when the wind is rippin. I love it.


Remember this from April 8th?

"I say, "Listen. Here's what I'm going to do. I'm going to come in on April 23 and get all of my records. I have a flash drive there and I want a copy of Dr. Y's report of my first and only visit. I'll go see someone else.' "

Well, la di da, guess what came in the mail today, with $5.07 postage to mail the thing? All the records I gave him from all the OTHER doctors I've been seeing.

What was missing from this bulky package? MY FLASH DRIVE WITH 55,000 CAPSULE ENDOSCOPY PICTURES ON IT AND ANYTHING WRITTEN FROM DR. Y HIMSELF.

Yes, the two things I specifically asked to have ready for me when I got there April 23rd were NOT in the package. GRRRRRRR.:

Of course, no one is there on weekends when you call the number. However, I am going to go ballistic on Monday, because it's obvious that is what you need to do here. I have never in my life had as much crap from the medical profession as I have had here!!!::
post #468 of 1017
Doctors get free samples of narcotics and when those run out, they can write their own script. Those guys are on another planet.
post #469 of 1017
Thread Starter 
They're all on drugs. Even their staff.

No one knows what a 'flash drive' is. I described it to his chipper voiced secretary (not the troll I talked to last week) as 'a memory stick that looks like a pack of gum that you plug into a computer to download information'.....and she had no idea what that was. Neither did the people in records that I talked to just now. What planet must I be on!?

I haven't had stomach issues all week. Aside from some very slight pain, I seem to be ok. I'm still taking the Singulair tablets, so I'm unsure if it's that med or the fact that it's been almost a month since the rod came out. Time to stop taking the meds and see what's new.

I shook my head yesterday while I was driving (I don't even remember why) and instantly got a piercing headache. It felt like my brain was banging around in my skull. I made notes and will tell the neurologist when I see him next Wednesday. MRI's are scheduled for this Wednesday.

I'm walking around pretty good now, but if I'm on my feet too long, I can feel it where the break was. Doc said that the compression would help it heal. Well, maybe that's what the ache is, I don't know. It's hard to describe. It's been 16 months since the break and I'm still striving for normalcy.

I envy the people who can just jump up and be good as new in a short time. Ain't age a bitch?
post #470 of 1017
Thread Starter 
I had an MRI today. TWO HOURS of lying flat on a hard surface unable to move my head or back, head locked in a cage. It got so bad my shoulders got HOT. I mean HOT, like I was on a heating pad set on high. I was sweating and felt burned. At one point the whole table I was lying on started shaking. I've never experienced an MRI machine shaking before. :::

Usually they give you breaks to move and scratch. NOT ONE BREAK, except after an hour and 40 minutes when they pulled me out of the tube and said "Don't move your head or spine. We need to inject you with contrast and you need to stay in the same position." I thought I was DONE!!

I thought I'd go mad. I'm claustrophobic. I can't even sit in the middle of a row in a theater. I have to be on the end. But I can handle MRI's because I just close my eyes and dream of stuff, but this time it went on WAAAAY too long. Being all the way in the tube is like being buried alive and since they were doing head and spine...... 2 hours in there.

I've never had an MRI go that long before. It was HELL.

I go back to Boston next Wednesday for the results. If they find dustballs and Jimmy Hoffa, I'll be happy. Just find SOMETHING.

By the way, Mass General is Harvard's teaching hospital. When the tech peeled me off the table (I actually thought at one point that I was melding with it) and I staggered down the hall to the restroom, there were about 10 students clustered around someone else's MRI monitors in a little room all discussing things with zeal. I was reminded of HOUSE.

Oh yeah. Forgot to get back with my case manager about a staffing. Oops.
post #471 of 1017
Hey, you had a GOOD day!


At least you didn't get wiped out by a chair in the MRI.

post #472 of 1017
Thread Starter 
Wow.....that was too cool!
post #473 of 1017
Quote:
Originally Posted by Cirquerider View Post
Hey, you had a GOOD day!


At least you didn't get wiped out by a chair in the MRI.


Um, why didn't they just turn it off?
post #474 of 1017
Thread Starter 
I'm sure it was an experiment to show just how strong the magnetic field is. No wonder my metal fillings hurt.
post #475 of 1017
Mercury Amalgam fillings?

Not magnetic AFAIK
post #476 of 1017
Thread Starter 
That's true.

Medicine these days is nothing but Mind over Matter: They don't mind and you don't matter!!!
post #477 of 1017
Quote:
Originally Posted by Bonni View Post
I'm sure it was an experiment to show just how strong the magnetic field is. No wonder my metal fillings hurt.
post #478 of 1017
Thread Starter 
What fresh hell is this? I had a good night last night and today I feel like I was run over. I've only had the flu once in my life, and I realized all those times I said I had the flu, it was something else. The Real Flu kicks your ***.

I feel like that today. I had to force myself to do things, and even then I had to rest between jobs.

I hope they found something in the MRI's. I just can't keep feeling this way day in and out.
post #479 of 1017
Isn't this the Wednesday for results from the latest battery of tests...?

- KK
post #480 of 1017
Thread Starter 
It is. I'm still confused about what just happened today, but I'll post tomorrow after I talk to my hometown neurologist.

Something is just not right.
New Posts  All Forums:Forum Nav: