I'll continue the story.....it gets better.
Meanwhile, Jeff is talking to the doc who comes to his work as a liaison for our insurance (he's an ER doc). He tells him this stuff (it's now Thursday). Doc Oscar, Jeff and I have a conference call. He tells me that I need to have a CT scan and stool sample tests Minimum. He tells me to go to the ER and tell them this is what I need, and if there is a problem, to have him paged. I get his pager number. I go to the ER.
I sit there for 90 minutes before they even take my blood pressure. The room is stuffed full of people. It's 2 pm. Guys come in with busted teeth and arms. I decide to be stupid and not spend 12 hours in a waiting room. I tell Jeff, who tells Doc Oscar, who says come in to the ER at his hospital (out of town) on Saturday, and he will personally take care of me.
I arrive Saturday, he's thorough. I get a CT scan with and without contrast. I have several issues: small hernia, loop in the bowel, possible obstruction, inflamed ilium and a 6 mm node on my lung. Neither Jeff or I remember what the numbers were for, but one of my blood test results was off the charts. I just remember Doc Oscar saying "High is at 25....you're at 70." I have to ask, but in light of all this other stuff, I forget to remember.
I get a shot of Solumedrol, the same steroid I take for MS, and get sent home with a passel of meds: Cipro, Flagyl, Prednisone, Difulcan and Vicodin. I'm going to be killing off all the bacteria, so I'll have the trots and yeast infections going on. Groan. Deja vu.
I am told that Pepto and high fiber are the worst things I can do right now. Things are going through my system, but it has to squeeze through an intestine the size of a damn pencil. I do NOT need to Bulk Up...which is what the gastro doc who did my colonoscopy in April told me to do.
: He's history, too.
I feel better 6 hours after leaving the ER. Now I'm just manically energetic. Steroids do that to me. I get all hyper and can't stop working.
The pain is managable, but it's creeping back at day 4. I have a Tuesday stress test that includes dye to see exactly how blood is flowing through my heart (I've had shortness of breath and palpitations since June. I had a stress test July 16th, with abnormal results, and not one doctor would follow up on that! How crappy is that? Am I gonna keel over???
. I see a NEW gastroenterologist later that same afternoon to schedule more tests since the radiologist who read the CT scan cannot say for sure what is going on. Crohn's disease was mentioned as a possibility.
I talked to the office manager in charge of Dr. Death, and tell her the story. She says she'll talk to him and get back to me. She calls me the next day to say he's on vacation all week but she'll talk to him when he gets back. I tell her I've transferred my records to another doc (one that Doc Oscar recommended), and I'm no longer giving you access to my health and taking my money elsewhere. After all, are you running a business........or not? She seems not to care that I was sent home with a bad diagnosis with NO BASIS WHATSOEVER.
I saw my new doctor yesterday and he is thorough, pleasant, caring and funny on top of it (he looks like Paul Giamatti!
). I am getting better care the last week than I have all winter!
I still have the headache that was present since February, but I have to put that on the back burner yet again. I have bigger fish to fry.
So, if I'm gone from here, I have a full plate, and am trying to deal. It's tough.....but I'm trying not to be too depressed. I'm short tempered (more than usual) and frustrated. I'm tired of the pain. Sometimes I feel
like I'm just gonna die, but I know I'm not.
There's nothing like good health. What a hell of a year it's been!!