Tom, this won't keep you down for long. Get after it man!
And feel better soon.
I was released from the hospital last evening and am happy to be home again. the Neuo team admires a good attitude, but say healing will take place at its own pace, so relax and let it happen. Menwhile I will get home intravenous therapy and do follow-up with the docs. I'm disabled in a way I've never experienced and have new respect for victims of trauma, stroke and illness that may not have the prospects of recovery that I do. It's an amazing experience, I'd be happy to forego.
Thanks for all the good wishes. This community has always been a great source of support and advise. I've known many or you virtually or in person for many years. Thanks again. I'm humbled.to matter to so many.
Wow, Tom, I just saw this. Really sorry to hear about it.
Lyme is such a strange disease. I'm glad they were able to diagnose you and get treatment started. Sounds like your attitude is good and that is a major key to getting better. Best of luck in your recovery.
I was just thinking the same thing. I imagine, when Tom is 100% and reviews this thread he'll see a big difference as he heals.
I;ve been home a couple days now. Progress is slow but it is perceptible (that is a sentence I still can't verbalize). It is really tiring trying to read and respond due to the double vision, but I do get my fair share of use out of spell-check, and it IS getting easier and better.
Half a smile is better than none, and I can now lift the corner of the right side of my mouth. You won't know what you've got till it's gone.
Tom hope you recover with minimal side effects. Lyme can be nasty.
5 deer roam our area in the city! It's the tiny deer ticks infected by deer and other animals.
A neighbor & 4 others I Know got bitten by deer ticks. We've been lucky so far.
The kind of symptoms I got out of this were a one in a million shot. There is some thought my own immune system played a role in the neurological effects. The numbness and paralysis of the abdominal region is not normally associated with Lymes. On the positive side, the palsy on the right side of my face is lifting and I'm able to offer half a smile if you're looking.
25 pound weight loss. Not the recommended diet, but I'll take what i can get.
lyme is known as the great imitator; it can affect a person with almost limitless symptoms;. weight loss or weight gain are two "common" symptoms. Since we are at the proverbial ground zero, we are fortunate to have several Lyme specialists in our area. I had it, my wife had it very badly and many people around us. Lyme Specialist usually wont take insurance and wont be affiliated with hospitals due to the many issues with insurance companies and the outdated CDC protocols that have not kept up with the mutations and many new strains of Lyme. I would make sure whoever is treating you is up on the various strains and treatments.
My wife was told she was free of lyme even though she was having neurological issues, she went to specialist who ran different panels of tests, found the disease still raging but in a different strain and on different tests not tested by CDC protocols. If it wasn't for this it would have persisted without treatment. Once it gets into the brain and central nervous system, it can be extremely difficult to get rid of.
One of my dad's friends in Manton, Michigan had Lyme Disease which he contracted from a tick when he was deer hunting.
He was a big tough guy and didn't go to the doctor until it was critical and was rushed to the emergency room. By that time, it had attacked his central nervous system and was treated as if he had MS. It took a long time before anyone considered Lyme and by then it had a devastating and permanent affect.
What Finndog is saying rings true. There aren't enough current protocols nor enough professionals who pursue Lyme unless you see the bulls eye.
Cirque, stay tough and stay on top of it.
As many ticks as there are along with the number of people that play outdoors I bet a lot of people get mild cases that never get diagnosed. I can't count the number of times my kids and I have come back from a hike or been out fishing and pulled 5+ ticks off. There must be ones we don't ever find too. Part of me wonders if the persistent, almost daily migraines I've suffer from since 2003 could be from something like that. If I didn't have a pharm remedy that works 95% of the time I'd probably have to be on disability .... and in and out of the hospital trying to figure out what the hell is wrong. I've had a brain MRI, but I don't think I've ever been tested for anything like that. They (personal docs, UNC Headache Clinic, Duke Pain Clinic) just keep trying different expensive, temporary drug remedies rather than making any new efforts to root cause the issue.
most deer ticks are spread by mice, squirrels, rabbits, chipmunks and other small critters. Its just that people associate deer with deer ticks. ALso, most people who contract Lyme never have the bulls eye or other skin rash. I had a large bright red patch on my hip but not a bulls eye. it got into the lymph nodes in my groin! It was incredibly painful but thankfully, I was able to get treatment early enough. My wife had no rash. Most also never see the tick.
you cannot build immunity. Relapse is when people experience a re-occurence of Lyme's often when the initial course of treatment is not long enough or strong enough. Re-Infection is when people experience another infection due to another bite. It is not uncommon for this to occur.
I went to the OKC Allergy Clinic every summer through my late teens to be given the food allergy pin cushion treatment. I haven't had any food allergy issues since my early 20s. I have tried a lot of different dietary changes to see if that would help.. nothing seems to matter. But, taking an afternoon nap frequently makes a difference. Too bad we don't live in a world where that is feasible while working a full time day job.
Wow, that's crazy how it just knocked you on your ass out of the blue. Sorry to hear and hope the recovery is swift.
You've probably been told about it already, but the New Yorker had a fascinating article last week on Lyme disease, other perhaps tick-borne illnesses, and the disagreement and acrimony between doctors and patients on Lyme-related diseases (or some other illness). Not sure if you need a subscription to see it, but it was in the July 1 issue.
Wow, bad luck. What's the deal? I remember sharing a chairlift with you back at Solitude in 2010, and you announcing you'd just got over having H1N1. I resisted the urge to push you off the chair to save myself, but I admit I leaned away ever so slightly to breathe. Get healthy !
From the gist of the article you could have it dormant for decades and then suddenly flare up. Moving west reduces the chances of new infection, but sounds like just about anyone anywhere can get it.